Thursday, May 31, 2012

i got a little behind...

So far this week Landon has turned 9 weeks old, got his stitches out and rolled over!!! I also missed days 6,7,and 8 post op so here we go...

Tuesdasy- Post op day 6

This is how Landon has been having to eat! It has been very trying for both him and us to figure out how to eat with this bottle but we are getting and about the time we get it down he will be able to have his bottle back!

Wednesday- Post op day7 and stitches out


Landon got his stitches out this day! Dr. Demke took him back to O.R. so that way Landon didn't have to feel it or remember it! He did great, he was back in the O.R. all of 20 minutes! And he was in recovery about 5 minutes, and the nurse he had gave him a bottle!!!! I was so freaking mad I could have hit him!!! But Landon feels much much better with his stitches out!

This is Landon when he got back to his day surgery room and got to eat some breakfast!!

Landon loves laying on his tummy on my chest and he can finally do it again now that his stitches are out!

Thursday- Post op day 8
Even though he has been a crabby pants today he still felt like watch his movie and laughing at it! Too bad he wouldn't watch the whole thing... oh well 5 minutes of happy and laughing is ok!! Hopefully he will be back to himself in the next couple of days.
Landon's steristrip came off this afternoon! His lip looks so amazing! You can't tell how good it looks in this picture but in person it is amazing!! I love my little man more than words can describe and he is beautiful with or with out his cleft lip. I know that God knows what he is doing and he knew what he was doing when he gave me this special boy, he is perfect!!






Monday, May 28, 2012

9 weeks old, day 5 post op, and goodbye steri-strip

Well last night the "mustache" (aka steri-strip) fell off! I was really nervous to see what Landon's lip looked like. BUT... we have an amazing surgeon and he did a great job and it looks GREAT! I think my little man is super handsome!! I think Landon was handsome before and now he is still very handsome! We go back to the hospital to have his stitches removed on Wednesday. Today is day 5 post op, and Landon is starting to get back to himself. He is starting to smile some again, and if he could have a bottle or a paci or his hands he would be the happiest baby in the world.

Right after Landon's steri-strip fell off last night! Very handsome!
Day 5 Post op
 Landon is 9 weeks old today!! It is crazy how time flies by!! I'm pretty sure that if Landon didn't have to wear his arms boards he would be rolling over, but he is sitting up in his bumbo pretty good now! And now he is sleeping at least 8 hours a night!! And he is growing like a weed, he is 13 pounds now and 22 inches (we measured and weighed Wednesday before surgery).


Close up of day 5
This is the bottle Landon has to use to eat so he can't suck and we squeeze his formula in to his mouth. He hates it!



I wish I had some funny story from yesterday but I don't... maybe tomorrow!

Sunday, May 27, 2012

Cleft Lip Repair Surgery

On May 23 Landon had his cleft lip repaired. I fell in love with his lip and his cute little smile so much that I was very sad when he went to have it fixed. I cried (I cry a lot lol) when they took him back to surgery. He was in surgery for 3 hours!!!! And we spent the night in the hospital. It was so hard to give Landon to the surgery nurse to go back to surgery. Thankfully I had Brandon, my mom and dad, and Brandon's mom there to help us through this hard time and long 3 hours. When he got out of surgery they let me go back to the recovery room and hold him! When we got to the pedi floor we got a great nurse and Landon was just so out of it he just slept and slept and slept. When he decided he wanted to wake up some we tried to feed him but we couldn't give him his bottle because the sucking motion can cause more scarring and cause it to look puffy. So we tried to feed him with syringes and it was a disaster so the speech pathologist came to help us and we could get him to eat some with the syringes. But when we got home we couldn't get him to eat from the syringes and it was very stressful. Finally we got him to eat from the crazy looking bottle, thank God! We are now on the road to recovery! Less than a week left until we can start using the bottle and pacifiers again and we get to take off the crazy arm boards (I hate them!!!).
Before surgery! I am going to miss his cleft lip!
In the recovery room!

In the room after surgery! 
Me and Landon after surgery!

Brandon and Landon after surgery!

At home!
post op day 1

post op day 2

post op day 2... again

post op day 3

post op day 3... again

post op day 4


Weeks 0-8



Right after Landon was born. 



One day old!

Landon was very yellow (jaundiced) so he had to be on a bililight for a few days!
1 Week old! 
2 Weeks old! Its amazing how fast he is growing!! His umbilical cord fell off! 
3 Weeks old!! 
4 Weeks old!! He is smiling now!!
5 Weeks old!! Landon went on his first road trip! We went to Dallas.  We went to the Dallas World aquarium and Landon slept most of the time! And we went shopping and Landon did NOT like shopping. 
6 weeks old! Landon started sleeping longer in the night about 6 hours!!!  WooHoo!!
7 Weeks old!! Landon is now sleeping 8 hours at night!!! YAY for a whole night of sleep!!!!
8 Weeks Old!!! Landon will have surgery the Wednesday of this week!! He is big enough that we can do it early that way it is done by the time I go back to work!

Catch up


I am starting this blog a little late so let me catch you up...
When we were 20 weeks pregnant we had the normal 20 week ultra sound to check for growth and development. The doctor asked me if I was seeing what he was seeing at my baby's mouth, there was a shadow or void at his mouth. He told us that when he sees that on the ultra sound it usually means that the baby has a cleft lip and/or palate. I was devastated that I had done something to hurt my baby. We set up an appointment and ultra sound with a maternal fetal specialist for a few days later. During the few days until that appointment I was so worried and up set that something went wrong. I googled and researched everything I could find about clefts and of course I found the worst situations of everything. Well the day finally came when we went to the specialist, and he confirmed what my OB had told us a few days before that our baby had a cleft lip, he told us that there was no way for us to tell if he had a cleft palate until he was born, he seemed to think that he had a mild cleft lip and probably no cleft palate but he could not be for sure. 


(I just want to put how much I love my sweet sweet boy and how perfect I think he is. And that God knows exactly what he is doing and when he made sweet boy he made him especially for me and he knew exactly what we needed. Landon needed me and I needed him.)


After the doctor confirmed that he had a cleft lip I just cried and cried and cried. I was so mad that this had happened to him. I didn't understand why. I had taken care of myself, I took my vitamins, I didn't drink, smoke or do drugs. After a few days of this my mom told me something that made me feel a whole lot better. She told me that the reason God had given me this special special baby was because he knew that I would be able to take care of him, and that if he would have given him to another person they would not be able to take care of this special boy. That made me feel better, for the time. I did more research, I looked at pictures and tried to imagine what my baby was going to look like. 
The doctor had given us a number to a cleft clinic, so we made an appointment with them. I thought we were going to have to travel to Dallas to have surgery because I didn't know of a doctor here in Lubbock that did cleft lip and palate repairs. Well when we went to the clinic they told me about a great doctor right here in the LBK that did these surgeries. I was so excited to find out there was a doctor here but I wanted to make sure that he was going to be great! So I started asking around about him and every body had amazing things to say about him.
We went back to the specialist at 34 weeks to check on his lip again. Well, everything pretty much looked the same. The doctor had a hard time finding his cleft lip at first but we did find it and he said that it was very mild and he still thought that he did not have a cleft palate. 
At this point I was just so excited about my little man fixing to be here I didn't care about anything else. We had a couple more ultrasounds with the regular OB doctor. Where he told us that he had only seen a cleft lip come out being a notch in the lip once, and that his most likely when all the up through his nose. I was very ok with this I had decided that I was very happy with a cleft lip and/or palate because we could have had a problem that was not fixable, and this cleft lip/palate was pretty much a cosmetic problem and there were lots of things to help him eat and we would get it fixed no big deal. 

Finally after 39 LONG weeks the big day was finally here!!!! March 26, 2012 at 9:04 pm Landon Lynne Grace was born!!! And I have never in my whole life been as happy as was that day! My little man was here!!!! 
Landon with his mommy and daddy for the first time!

7 pounds 4 ounces

My sweet baby boy!
I cannot explain the joy and excitement that I felt when I finally got to see and hold my little man. I honestly didn't even think about his cleft lip/palate when he was born, until the doctor told us that his palate was intact!!!!!! OMG what a blessing!! And his cleft lip was an incomplete cleft lip and it was so little!!!!! And he was beautiful!!!!!!!! The whole time I was pregnant I was worried about him being able to eat. I didn't care one way or another if he was going to breastfeed or bottle or special bottle or formula or pumping, I just wanted him to be healthy. Well when the nurses were cleaning him up in the warmer I looked over at him and he was sucking, just laying there trying to suck on something. And he was able to breastfeed which we thought it was a miracle in itself and he ate good!!! 


Brandon giving Landon his first bath!


1 Day Old
Our surgeon who is a plastic surgeon and an ear, nose and throat doctor (perfect for our situation) came to see us! He confirmed that Landon's palate was intact and that he had an incomplete cleft lip. 
Dr. Demke checking Landon out
After Dr. Demke checked Landon out we made plans to visit him in the office and check things out again and prepare for surgery to repair his cleft lip at 10-12 weeks. In those weeks it is amazing how much I fell in love with my little man and his cleft lip. Landon grew and developed amazingly! And I became a true mamarazzi!